Thursday, 31 March 2016

Type 1 diabetes & Illness

You can find this post on my new blog at
https://pancreasless.wordpress.com/2016/03/31/type-1-diabetes-illness/

(I know it's another blog post in a such a short space of time but it's one of those things that is circumstantial!)

One of the issues I find with having kinda complex medical problems, I don't know if anyone else finds this, is if I have another problem (especially if it is completely unrelated), I don't want to talk about it. I don't want to people to be all "Well. She's got another problem. Ugh."

For instance at the beginning of the week  I started losing my voice, then a day or two later I got a cough and a slight cold plus I've had a slight temperature a couple of times. And now in the last day or so I've started to struggle breathing - it started with laughing made me cough and now it's like I can't can't get enough air in my lungs all the time. But the thing with not wanting to burden people with it is I don't know if I'm being over dramatic in my head - it's just a bad cold! - or whether I'm being under dramatic - is it really serious? Should I go and see a doctor and ask for antibiotics? Because I don't talk about it, I just don't know. 

Another thing with normal medical problems and illness is for literally EVERYTHING, websites, a lot of doctors and just people in general all go - "Ahhhhh!!! You're type 1 diabetic? You had a pancreatectomy?! You must be admitted to hospital for your sore throat!!!" Which I know it might me true but it just makes the whole, "I feel ill" and speaking up thing worse because I don't want to then say, "should I be concerned about the diabetes too?".

I just don't want to be the girl that has a gazillion medical problems and is a hyperchondriac on top of that and just can't get enough of the attention that being ill and problematic gets her. Because that is definitely not me. I don't even want that to cross people's mind's. 

So. I never know what to do. It's a little more easy when you've injured yourself because you can't hide not being able to put weight on your now stripey ankle, but illness is not as apparent. I just don't like announcing it, I actually have to build up courage and psych myself up to say "I don't feel well" and if someone goes, "Meh" or "Yeah, what about it?" I cannot repeat it or explain if it is a 'bad' I'm feeling ill.  

~ I would like to add that when I typed 'pancreatectomy' my phone went "NOPE". "Pancreas texting".  .....As if it had just gone - "Yo, I'm bord, wanna have sum more insulin? Ya'know what? Imma leave u 2 it instead! C ya L8r!". Please. 

Saturday, 26 March 2016

Co-Dependancy

You can find this post on my new blog at
https://pancreasless.wordpress.com/2016/03/26/co-dependancy/


Recently, I've had a few VERY low hypos. I had a 2.1 just as I was leaving somewhere on my own. I was so confused that I didn't know how much Lucozade I had drunk, or needed to drink, so my first instinct was to call my mum.

A few days later I was just leaving a shop with my dad and I was 1.7. This time my dad was there to help me, but when I reached 3.2 and started heading back down again for some reason, my first instinct was to call my mum.

About a year ago I was in town, again alone (I had only been out about 15 minutes), when I decided to test and I was under 1.1. I didn't even have Lucozade, I called my mum instead.

Each time I have a bad low without my mum there -  my first instinct is to talk to her. Because I know that she will either come and get me or at least sort it out and somehow in my hypo state I realise that. Probably because she's never failed to help me before! I guess it's quite a good thing that I call my mum though, it's a lot better than my first instinct being to go and do 10 star jumps or something stupid as you would expect a hypo person to think of doing.

Because I've nearly finished my GCSEs, I've had to think of the future quite a lot recently and in particular -what I'm going to do Diabetes-wise when I don't live with my mum. I've realised that I definitely need people around me to help me when things get too bad or too much with my diabetes, so I'm going to have to find that person who I trust my life with (and that's difficult to do!) but I'm worried that I won't. I simply can't do diabetes by myself and I never EVER want to live alone. Whether I find a boyfriend, best friend or group of friends to room with, I would rather live at home with my mum and travel 2 hours to university than live alone!

On the more positive side, I keep on thinking about the fact if I end up in medical school, all my peers will more than likely be very interested in all my medical problems and hopefully (fingers crossed!) willing to help me if I need it. They would also, hopefully, grasp the seriousness of it all and not panic in an emergency. Hopefully.

I don't really know what my future holds, but I'm going to make sure I don't do whatever it is alone.

Sunday, 6 March 2016

My Medical ID Braclet

You can find this post on my new blog at
https://pancreasless.wordpress.com/2016/03/06/my-medical-id-braclet/


When I was about 2 years old my mum bought me my first ever medical ID bracelet. It was a small gold bracelet which had to have links taken out of it because my wrist were so tiny. I haven't really taken an ID bracelet off since. It hasn't always been that exact one of course, I don't think it would fit anymore!

I've probably had every type of ID bracelet under the sun! And a couple of necklaces as well. I remember a purple sports band with pink  flowers and a Velcro fastening when I was about 5 years old (although I had a necklace that I could tuck under my sihrt for school whilst I was at primary, at secondary I just wore a bracelet). I had a bracelet with mood beads on and two clasps so that the disc with the medical details on could come free of the bracelet. This gave me the idea of making my own bracelets. I don't really know why I decided to that. They were very interesting bracelets. Not very flexible, mismatched beads and often there would be small, sharp bits of wire sticking out at odd angles. I always ended up gravitating back to the proper bracelet anyway! It was much comfier.

After asking for a black thread bracelet that tied to the disc for Christmas about 2 years ago (which didn't last very long as it almost disintegrated when it came into contact with water!) it brings me to my current bracelet. And I love it!

I decided not to get the silver version because I wasn't sure how I would get on with it due to the fact that it is a different style from my previous bracelets. So, it is a stainless steel chain with very big links, a circular charm that dangles off it with the medical details engraved on one side of it, the medic alert symbol on the other side and a polo clasp that secures it on my wrist. (For anyone that doesn't know, a polo clasp is a ring with a bar that goes through it and hooks itself there.) I wear it as an accessory now, it is just another bracelet. However, it is a bracelet that I virtually never take off. I wear it when I wash, sleep, eat - 24/7 pretty much! Although with the exception of during exams because it is on my right wrist so it makes a tapping noise on the table in the silence.

For the first couple of years I had a simple bracelet with 'Diabetic' engraved where my name was supposed to go and my mum's mobile number on the underside. But then we started getting Medic Alert jewelry with the easily recognisable symbol and details of my conditions and medications were kept on the website that had a small number connected to it that would be engraved under some basic details on the bracelet/necklace itself. (It is a yearly subscription, but worth the money). If I collapsed on my own or had a severe hypo and was unable to care for myself, the paramedics would easily be able to find my details and treat me very quickly.

But on the bracelet's disc/charm thing I have this written on it:


'Type 1 Diabetes
- On Insulin Via
Pump, 95%
Pancreatectomy
Hypermobility. Call
for Details
(then my ID number for the website)'

So even without searching the internet, my blood sugars would be tested and treated much more quickly than if they had to find out I was diabetic somehow.

Yes, I do lose it sometimes and I turn my entire bedroom upside down to try and find it (the last time I'd lost it it was actually at school for the whole of the two weeks' holidays as it had broken and fallen off my wrist! That's the only time that happened though), but it is well worth having one. If you are diabetic and don't have an ID bracelet, I highly recommend getting one! Or if you just have a medical condition e.g. a severe peanut allergy or epilepsy it is a very good idea:)

Medic Alert's website - https://www.medicalert.org.uk/ go and check it out!

P.S, I haven't been asked to write this it is all my own opinions.